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Channel: Ella's Journey
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Life's happenings

We are doing well here and Ella is really doing great! Her sats are a little lower then we might like some and she is still having some blue episodes and shortness of breath, but those will never fully...

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Update from Ella's cardiology appt!

We took Ella to see her card in Dallas on the 18th and I am just getting to updating. It was a great appt!! Ella has moved from terror and tears at the sight of the hospital to excitement and "are we...

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Be kind to one another

Ella is doing well, we are living life and enjoying our time together as a family! Ella is still loving dance class and her recital is just around the corner, we can't wait to see her on stage! I...

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Ella's first dance recital!! :)

It was a wonderful day surrounded by family and friends, flowers, gifts, and ice cream! This girl loved every minute on the stage! Each time she finished one of her dances she couldn't wait to get back...

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1 year post Fontan!!!

1 year ago today we left our home to head to Dallas. We were to have pre op as soon as we arrived. The next day we would be sending our 2 year old in for her 4th open heart surgery. The emotions I am...

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Mother's Day/Father's day 2014

Mother's Day 2014Father's Day 2014What an honor it is to be her mommy and her daddy!!!! 

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A little catching up and a prayer request.

I'm so sorry I have not been as consistent in my updates lately. Our computer has not been working well and that makes it difficult to post updates and pictures. Ella is doing well, we are in awe of...

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Quick update and prayer request!

Ella's 4th birthday is this Saturday and we are SO excited! Ella has been counting down the days for the last month and we have a big cake coming through the icing smiles organization again this year,...

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4 years ago today Ella had her first open heart surgery.

              4 years ago today was one of the scariest days of our life, we sent our one week old baby girl into her first open heart surgery. She was so very sick. Fragile. In fact we knew she may...

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Heading to Dallas soon

We would appreciate your prayers for safe travels and protection from germs as we head to Dallas on Friday for Ella's check up. This is supposed to just be a routine check up, but we do have a few...

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4 years since Ella's second open heart surgery.

* This post was written on Aug. 23rd4 years ago today we sent our 2 week old baby girl into her second open heart surgery. It was several hours long and when she came back to the room her chest was...

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Emergency Dallas Visit

Starting Mid September Ella had her first "episode". It started after a full day and a half of playing outside. She hadn't eaten much, she usually doesn't when she is away from home, or even if we have...

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Update

Ella's urology appt went well yesterday and we have a plan in place to hopefully mange the UTIs better without the constant need of antibiotics.She is still having "episodes" and some low oxygen with...

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update

Ella hasn't had any "episodes" since the 13th so that is great! She is still not where we want her to be with her oxygen and heart rate, but is doing okay. Her bowl track is still not back to normal...

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Radiology and Urology update

Ella is still not close to where we need her to be as far as bodily functions. I called the urologist yesterday and talked to her nurse and told him that we wanted to come in for another appt. and we...

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GI appointment update

First of all, thank you all for praying! We love the Dallas Heart team and our first experience with the GI team was just as great! The doctor fell in love with Ella (who wouldn't?) He said she knew...

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Heading to Dallas again.

Tomorrow, Dec. 10th, we will be heading to Dallas yet again. We will be seeing Ella's GI doctor this time. Ella is just not improving the way she should be, and she has begun to have some mild...

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Update on Ella's appointment today

We are home from Dallas, thank you for praying. Ella did well at her appointment today, her anxiety was very low and she didn't have to get any "needles" so that made for a much more enjoyable trip for...

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Wear red February 6th!

February is CHD (congintal heart defect) awareness month. We will be wearing red for national wear red day this Friday the 6th (tomorrow)! We would be honord if you would wear red to support Ella and...

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CHD awareness

This post was written last year at this time. It still rings so true today. Sunday, February 9, 2014The other 364 days. Why it matters.It's not just about wearing red one day a year. Today is day 3 of...

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